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Please JOIN ME in writing to your US Representatives… PERSONALIZE the pre-populated letter WITH 1-2 SENTENCES about your rare journey!!!

Help me get the word out about two bills – the HEART Act and Access to Rare Indications Act – that will make an incredible difference in the lives of rare/ultra-rare patients.

DO THIS NOW, THEN PASS IT ON TO YOUR FAMILY, NEIGHBORS, AND FRIENDS!!

 

Please JOIN ME in writing to your US Representatives… PERSONALIZE the pre-populated letter WITH 1-2 SENTENCES about your rare journey!!!

Help me get the word out about two bills – the HEART Act and Access to Rare Indications Act – that will make an incredible difference in the lives of rare/ultra-rare patients.

DO THIS NOW, THEN PASS IT ON TO YOUR FAMILY, NEIGHBORS, AND FRIENDS!!